Association for Creatine Deficiencies

Compensation

Full Description

About Us Every day, families around the world are impacted by cerebral creatine deficiency syndromes (CCDS)—a group of rare genetic conditions with no cure. At the Association for Creatine Deficiencies (ACD) , we’re on a mission to change that. By raising awareness, supporting families, and funding groundbreaking research, we are bringing hope to those affected. We’re looking for a Social Media Coordinator who is excited about using digital tools to make a difference. In this role, you’ll be the voice of our community online—helping us reach new families, engage supporters, and amplify our message of hope. Our team is fully remote and works closely together through Slack, Zoom, and other platforms. If you thrive both working independently and collaborating with a small, passionate team, we’d love to meet you. Position Details Type: Part-Time (15–20 hours per week) Location: Remote (based in Utah) Reports to: Executive Director and Programs Coordinator Responsibilities Social Media & Content Create, schedule, and publish engaging content across social media platforms Monitor channels for engagement, comments, and messages; respond promptly and appropriately Write blog posts and news releases to share stories and updates Email & Digital Communications Design and send email campaigns and quarterly newsletters in Mailchimp Support fundraising programs with compelling messaging and digital assets Community Engagement & Media Promote ACD events, initiatives, and stories with media partners Elevate patient and family voices across platforms Website Management Maintain and update content on ACD’s WordPress website Qualifications (Required) Bachelor’s degree or equivalent work experience in a related field Proficiency with Google Suite, Canva, and major social media platforms Strong verbal and written communication skills Excellent organizational and time management skills Ability to take initiative and work independently Team-minded, collaborative, and open to feedback Proficient in English (additional languages valued due to our international community) Preferred Skills & Experience 2+ years of experience in social media, marketing, fundraising, or nonprofit communications Experience running social media promotions or campaigns that drive engagement or fundraising Familiarity with influencer outreach, partnerships, or collaborations Knowledge of community growth strategies for online audiences Comfort with tools such as Mailchimp, WordPress, and Linktree Compensation $20–$25 per hour, commensurate with experience Part-time role; health and retirement benefits not available How to Apply If you’re passionate about using social media for good and want to help families affected by rare disease, we’d love to hear from you. Please send your resume with a cover letter containing your salary requirements to: Colleen at